Great reads for navigating life with PKD
Getting lost in a good book is one of my favorite ways to relax and unwind at the end of the day. Some of my favorite reading is when I find a book that is both interesting and educational – I assume...
View ArticleWhat’s New in PKD: A Day of Learning
One of the most rewarding parts of my job is having the opportunity to talk with PKD patients, listen to their experiences and help answer their questions about living with PKD. If there is one thing...
View ArticleCheck out upcoming opportunities for education events
The second half of 2015 is chock-full of opportunities to learn about a variety of topics related to PKD. National Webinars In four national webinars between now and December, you’ll learn about: Pain...
View ArticleNew education webinar series kicks off!
Last Wednesday, we held the first episode of our new education series Webinar Wednesdays. Chief Scientific Officer David Baron, Ph.D., discussed vasopressin and its connection to PKD. For 45 minutes,...
View ArticleIntroducing the new PKD patient handbook
After almost a year of hard work by the PKD Foundation and a team of amazing PKD physicians, the newly updated PKD patient handbook is finally available! This was truly a labor of love for all...
View ArticlePKD National Convention: A learning experience
Best ever. Priceless. Life-changing. That’s how previous participants have described the PKD National Convention, and the 2016 event is sure to live up to it. Join us in Orlando, June 24 to 26 to see...
View ArticleBringing our vision to life with clinical studies
The PKD Foundation has only one vision of success: one day, no one will suffer the full effects of polycystic kidney disease (PKD). But how will we get there? One essential way we can discover...
View ArticleThe truth about drug development
Why does a drug therapy take so long to find? The post The truth about drug development appeared first on PKD Connection.
View ArticleTips for staying germ-free
Navigating through a world full of germs and bacteria can be tricky – especially for someone with PKD. Here are some general health tips to get you through the last weeks of the cold and flu season:...
View ArticleFinding hope at the PKD National Convention
Everyone says knowledge is power. But when it comes to PKD, knowledge can be scary. When I found out my 2-year-old had PKD, I jumped on the Internet and read all I could find about it. The more I...
View ArticleEducation = Empowerment
I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter...
View ArticlePKD National Convention: We are truly better together
It’s been nearly two years since that last PKD National Convention and I can’t wait to get on the plane to Orlando for this one. The 2014 Convention in Kansas City was my first, but attending it opened...
View ArticleKidney transplants by the numbers
April is Donate Life Month, so we put together some stats to underscore the importance of organ donation in the lives of those affected by PKD. More than half of people with PKD will develop kidney...
View ArticlePKD National Convention: We’re Better Together
The banners are down, boxes packed, and I’m feeling the satisfaction and relief of a successful PKD National Convention. As I reflect on the long days of planning, the thousands of emails sent, and the...
View ArticleLiving with PLD: Kelly Shakoor
I have always known that PKD runs in my family. The chain goes from me to my dad, aunt, grandmother and great-grandfather. In fact, my great-grandfather has one of his cystic kidneys on display...
View ArticleThe top four things you should know about water
Water plays an important role in hydration, but now researchers are finding out that being dehydrated may be particularly harmful to your kidneys. Here are the top four things you should know about...
View ArticleTop five things to know about nutrition
Watch Jacob Taylor, Ph.D., R.D., L.D., author of our new cookbook, Cooking Well: Delicious, everyday recipes for the PKD family, as he talks about the top five things PKD patients with good to...
View ArticleTips for Halloween
With Halloween just around the corner, we’d like to remind you of some helpful tips to keep in mind during this sweets-filled holiday. When it comes to pacing your candy and treat intake, remember the...
View ArticleLocal communities come together for a day of learning
The What’s New in PKD: A Day of Learning virtual conference is fast approaching! As preparations for the event continue, we sat down with Judy Ehrlich, Co-Coordinator for the New England Chapter, to...
View ArticleTop five questions about kidney transplantation
On March 25, 2017, PKD community members all over the country joined their local Chapters to participate in our exclusive, online education conference, “What’s New in PKD: A Day of Learning.” This...
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